How To Use This Site

Education: How To Use This Site

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Overview

The educational material on this website is intended for just about anyone interested in Chiari and syringomyelia, including (but not limited to): patients, family members, friends, teachers, and medical professionals.

The site is designed to be easy to navigate and all the information is written in an easy to understand style, using plain English. The materials are designed to present different layers of depth and complexity.

High Level Information

The High Level features include the Overview, FAQ, Education Sheets, Awareness Sheets, Glossary, and the Personal Stories from the newsletter. These items are a good place to start for newly diagnosed patients, or for friends and family who want to get a general feel for what their loved one is facing. In addition, many teachers, principals, and even medical professional have found these features useful.

Detailed Information

In general, the newsletter archives provide detailed articles in the form of research updates, case studies, interviews, and in-depth features. For convenience, the archives are organized both chronologically and by article type/subject. The newsletter archives are a great source for researching a specific topic, building a more detailed understanding of the conditions, or seeing what the latest research findings are.

Coming Soon

We are currently working on a middle level of information for people who want more detail, but don't have time to read the archived articles. Basically, we are creating a series of presentations, similar to the Overview, but on specific subjects, such as symptoms, diagnosis, surgery, etc. Each presentation will summarize the current thinking on a given subject, link back to specific newsletter articles, and even provide practical tips. We hope to have the first of these presentations on the web soon, so stay tuned.

Let Us Know What You Think

Your feedback will make this a better site and a better source of information for people in the future, so don't be shy.

Let us know what you think: editor@chiari-syringo-news.org

If you are sending a question, please be patient and keep in mind we do not give medical advice and can not comment on a specific case, but we will make every effort to answer you.

Disclaimer: This publication is intended for informational purposes only and may or may not apply to you. The editor and publisher are not doctors and are not engaged in providing medical advice. Always consult a qualified professional for medical care. This publication does not endorse any doctors, procedures, or products.