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What They Are
The Patient Education Sheets are one-page documents
intended to answer the most common questions someone has when they are first
diagnosed. They cover the basics of the conditions, the symptoms,
diagnosis, surgery, and what to expect. The information is in bullet
fashion and is not intended to be comprehensive, but rather to give a good
overview.
The links below are to Adobe Acrobat PDF files.
If you do not have Adobe Reader (or the latest version), you can get a free copy
at www.adobe.com
Chiari Patient Education
Sheet
Syringomyelia
Patient Education Sheet
Please send any comments or feedback on the Patient
Education Sheets to
editor@chiari-syringo-news.org
How To Use Them
The sheets can be used to educate anyone interested in
learning more about the conditions, or to give medical professionals who are not
familiar with CM/SM something they can look at. You may email them or
print them out and use them freely. We do ask that if you cut and
paste a portion of the document for a different use, please acknowledge the
source, including this web site address.
Distributing To Doctors
In the future we would like to distribute a number of
the Patient Education Sheets to every neurosurgeon and neurologist (we need more
funds to do this) so that they are available to patients when they are first
diagnosed. They are intended to give a person something they can take home
during a difficult time and then guide them to this website for more
information.
In the meantime, we are looking for volunteers to
print out copies of these sheets and take them to doctor's offices.
If you're interested:
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You can find a list of neurosurgeons near you at
www.aans.org.
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You may want to call first, explain that you would
like to drop off literature about Chiari and syringomyelia and ask when and if
you can do just that and how many copies to bring.
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Please be polite, some office may be more receptive
than others.
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Let us know how you do:
director@conquerchiari.org
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