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March, 2008 (Volume
6, Number 2) [Printable Version]
Message From The Editor:
Conquer Chiari, The Book
Research Updates:
*
Chiari Symptoms Can Come
Back Years After Surgery
*
Details Of CSF Flow
Used To Predict Symptom Recurrence
*
Fluid Motion Inside Syrinx
Predicts Post-op Shrinkage
*
Study Shows Most Syrinxes
Shrink Significantly Three Months After Surgery
*
Chiari & Restless Leg Syndrome
*
Chronic Pain
Disrupts The Brain's Natural Activity State
Ray's Corner: Clarifying
Some Important Treatment Options
Good News Story:
Minimally Invasive
Surgery Worked For Traci
Fundraising:
Kansas
Walk Raises Money & Awareness, Kansas Passes Awareness Resolution
In The News:
*
Extreme Home Makeover to Rebroadcast Chiari Episode
*
FONAR Upright MRI Shows Chiari Related Cranial Settling
January, 2008 (Volume
6, Number 1) [Printable Version]
Message From The Editor:
Major Research Conference Planned
Research Updates:
*
Multi-generational Chiari Family Adds To Confusion
*
Study Identifies Features Of
Chiari Related Scoliosis
*
SM Related Scoliosis
May Be Due To Spinal Muscle Denervation
*
Surgery Has No Effect On Cervical
Range Of Motion
* Connective Tissue Disorders Linked To
Chiari In Some Patients
Special Report:
The Year In Research, 2007
Ray's Corner:
Dare I "Suggest" Hypnosis?
Good News Story:
Ryan DeCarlo Didn't Let Chiari Get In The
Way Of His Sports
Fundraising:
Chiari Walk In Kansas; New Fundraiser
Form
Community News:
Woman Looking To Start
Delaware/Maryland Support Group; Poems On The Web
November, 2007 (Volume
5, Number 6) [Printable Version]
Message From The Editor:
The Promise Of Stem Cells
Research Updates:
*
How Useful Is
Measuring CSF Flow?
*
More Findings Involving Chiari & Abnormal Skull Geometry
*
Large Study
Finds 80% Improve With Surgery
* CSF Flow Used To Evaluate Surgical Success
*
Exercise As Good As Medication For Treating Major Depressive Disorder
Ray's Corner:
Chiari & The Common Cold - Misery Loves
Company
From The Blogosphere:
Dr. Oro On Chiari & Contact Sports
Perspectives:
*
Electrical Implant
Provides Pain Relief
*
A Great Conversation
Starter
Fundraising:
Leverage Your Talents;
Shelby's Art
Raises Money For Research
Foundation News:
Research Grant Awarded To Look For New Chiari Test; Chiari Awareness
Resolution In PA
Letter To The Editor:
Focus On The Positive
September, 2007 (Volume
5, Number
5) [Printable Version]
Message From The Editor:
Setbacks
Research Updates:
*
Study Shows Promise For
Conservative Surgery In Adults
*
Can Posterior Fossa Volume
Indicate Symptom Severity?
*
Complex Chiari
Cases Have Poorer Outcomes
*
Extensive Laminectomy May
Increase Risk For Spinal Problems
* New Dural Patch Found To Be Safe And
Effective
Ray's Corner:
Everyone Needs A Hug
In The Spotlight:
Dr. Raymond Sekula, Neurosurgeon
Good News Story:
College Student, Competitive
Swimmer, Chiari Conqueror
Fundraising:
Miniature Golf Outing Can Be
Fun & Easy To Plan
News:
*
Ohio Advocate Gets Local Press
For Awareness Event
*
Ohio Awareness Event Big Success
July, 2007 (Volume
5, Number
4) [Printable Version]
Message From The Editor:
Thoughts On The Research Symposium
Research Updates:
*
Looking For Signs Of Chiari In
Idiopathic Scoliosis
* Urgent Surgery Is Sometimes Necessary
For Chiari
* Timing Important In Treating Tethered Cord
Research
Symposium Updates:
*
Failed Adult Chiari
Surgery
*
Bring On The Bioengineers
Ray's Corner:
Back To The Future
Fundraising:
*
Ohio Walk A Big Success, 4H Washes Cars, Chiari On Facebook
*
Tips For Organizing A Chiari Walk
Daily Living:
Chiari and Employment
You Gotta Laugh!!
A Veggie Tale
In The News:
*
CM/SM Research Study Looking For Participants
*
Dural Patch Recalled
*
Faster Acting
Antidepressants Closer To Becoming A Reality
May, 2007 (Volume
5, Number
3) [Printable Version]
Message From The Editor:
Research Symposium To Be Webcast
Research Updates:
*
Majority of Chiari Patients Suffer From Sleep Apnea
* Chiari II Affects Normal Eye Movements
*
Surgical Technique Alleviates
Serious Complication After Decompression
* Cognitive Suggestions Can Reduce
Pain
*
Syringomyelia Disrupts Pain & Temperature Sensing
Case Study:
Chiari Causes Psychotic Episode
Ray's Corner:
Tips For Fighting Chiari Related Depression
In The Spotlight:
Dr. Ghassan Bejjani Discusses How Chiari Surgery Has Evolved Over The Last
Few Years
Good News Story:
Long Journey Ends In Success
Perspectives:
Physician Heal Thyself
Conquering Chiari:
Woman Gets Chiari Noticed In Michigan
You Gotta Laugh!!
That Did Not Just Happen
Letters To The Editor:
Acquired Chiari; A Nurse From
New Zealand
In The News:
*
American Pain Society Announces Clinical Centers Of Excellence
*
Naturally Produced Analgesia
Holds Promise For New Pain Drug
March, 2007 (Volume
5, Number
2) [Printable Version]
Message From The Editor:
Keep Your Own Medical Records
Research Updates:
*
Scoliosis Affects
Surgical Outcomes In Adults
*
Limited
Surgery Shown To Be Effective In Children
*
Surgical Outcomes For
Adult Tethered Cord Surgery
*
Chiari Linked To
Lipomyelomeningocele
*
Study Examines
Feasibility Of Programming Shunts At Home
*
Simple Idea To
Improve Chiari Surgery
*
Possible
Biomarkers Found For Tethered Cord
Ray's Corner:
Look To The Founding Fathers For
Inspiration
Perspectives:
My Brain
Is A Mess...A Poem by Andrea Oliver
In The News:
*
Thinking
With The Spinal Cord?
*
Human Stem Cell Transplants
Repair Rat Spinal Cords
* Doctors Urged To Change The Way They
Prescribe Painkillers
January, 2007 (Volume
5, Number
1) [Printable Version]
Message From The Editor:
Conquer Chiari Goals For 2007
Research Updates:
*
Study Compares Surgical Techniques
*
Cerebellar Tonsils Removed During Surgery Shown To Be Abnormal
*
New Study Casts Doubt On Tethered Cord Causing Chiari
*
Neuropathic Pain Can Cause Cognitive Problems
* Pregabalin Effective In Treating Neuropathic Pain
Special Report:
The Year In
Research 2006, Same As It Ever Was
Ray's Corner:
Marathon
Stories From Ray, Annie and Adele
In The Spotlight:
Grant Winner Dr. Koentges Discusses His Research
Perspectives:
There Is Nothing
Wrong With Your Son
In The News:
*
Chronic Back Pain Linked To Changes In The Brain
* Snail Toxin May Lead To New Painkiller
*
Discovered Molecule Drives Nerve Regrowth
* Uric Acid May Heal Spinal Cord Injuries
November, 2006 (Volume 4, Number
10) [Printable Version]
Message From The Editor:
One Doctor At A Time
Research Updates:
* Zeroing In On A Chiari Gene
*
Minimal Tethered Cord Shows Abnormal Anatomy
*
MRI Documents Acquired Chiari Due
To Fatty Filum
*
Comprehensive Pain Programs Benefit Patients
* Stem Cells Restore Some Function To Spinal Injured Rats
Ray's Corner:
Good Things Come In
Small Packages
From The Desk Of Dr. Bland:
Connective Tissue Is The
Foundation Of Our Bodies
Foundation News:
Conquer Chiari &
Column Of Hope Award Research Grants; NYC Woman Raises Money For Research
In The Spotlight:
Grant Winner Dr. Stoodley Discusses His Research
You Gotta Laugh:
School House
Humor
In The News:
*
Australian Scientists Predict Major Medical Advances
*
NIH Study Finds Genetic Component To Chronic Pain
*
New Mechanism Underlying Neuropathic Pain Found
*
Canadian Study Shows The High Toll Of Neuropathic Pain
September, 2006 (Volume 4, Number
9)
[Printable
Version]
Message From The Editor:
Ten Ways To Stay Positive
Research Updates:
*
Small Posterior Fossa Linked To Chiari Related Syringomyelia
*
Sleep Apnea Causes Brain Changes In Children
*
Chiari Patients May Be At Greater Risk With Head Trauma
*
Pulsed Radiofrequency Used To Treat Neuropathic Pain
Ray's Corner:
Does Reiki Deliver The Healing Touch (Part II)?
Special Report:
Controversy Surrounds Occult Tethered Cord
Syndrome
Foundation News:
Fundraisers and Research Grants
Conquer Chiari In The News:
Aiming To Conquer
(As Published In Northern Connection Magazine)
In The News:
* One Big MRI
*
Prenatal Vitamins Dramatically Reduce Birth Defects
*
Warning Signs Of Painkiller Abuse
* Building A Bridge To Restore Mobility
August, 2006 (Volume 4, Number 7&8)
[Printable
Version]
Message From The Editor:
Lessons From The Doctor's Office
Research Updates:
*
Using Cine-MRI To Predict Surgical Outcome
*
Ultrasound Can Determine Extent Of Surgery Necessary
*
Chiari Related Memory & Learning Problems
*
With Chiari, Standing Up Can Cause Problems
Case Study:
Chiari In The Family
Ray's Corner:
Does Reiki Deliver The Healing Touch?
Family Impact:
Facing The Challenges Of Being A
Caregiver, By Nancy Scotton
From The NIH:
*
Neurons From Stem Cells Restore
Function In Paralyzed Rats
*
New Medication
Treats Depression In Just Hours
In The News:
*
Virtual Reality Reduces
Medical Procedure Pain
*
Survey Reveals
Devastating Impact Of Chronic Pain
June, 2006 (Volume 4, Number 6)
[Printable
Version]
Message From The Editor:
Reasons
For Hope
Research Updates:
*
Study Identifies
Cognitive Impact Of Chiari II
*
Children With Chiari Symptoms Due To Shunting Found To Have Small
Posterior Fossa Volume
*
More Than
Half Of Patients With Chronic, Disabling Spinal Problems Suffer From Major
Depression
*
New Syrinx
Theory Attempts To Explain All Types Of Syringomyelia
Ray's Corner:
Recovering From Chiari Surgery
From The NIH:
Small Nerve Fibers Key To Complex Regional Pain
Syndrome
Viewpoints: Overcoming
Arrogance And Ignorance Of Chiari
In The News:
* Music Can Reduce Chronic Pain &
Depression
*
Parents Of
Children With Rare Diseases Benefit From Support Programs
* Self Acupressure Technique
Addresses Chronic Pain
*
New,
Noncommercial Website Provides Up To Date Info On Pain Management
May, 2006 (Volume 4, Number 5)
[Printable
Version]
Message From The Editor: Opening The Research Front In The Battle To Conquer Chiari
Research Updates:
*
Treating Chiari Related Eye Problems
* High
Rate Of Chiari Found In Pseudo-Tumor Patients
* Fish Oil A Good Alternative To Anti-Inflammatories For Pain
*
Newspaper Coverage Of
Neurological Conditions Stigmatizing and Error Prone
Case Study:
Effects Of Minor Head Trauma
Ray's Corner:
Chiari Is The Duck-Billed Platypus Of Diseases
Perspectives:
"Asymptomatic"
Chiari, Good News Or Bad News?
In The News:
*
Implantable Device May Lead To
Nerve Regeneration In Chronic Spinal Cord Injury
*
New Imaging Method Has
Potential To Be Portable
*
Stem Cell Advance In Repairing
Spinal Cord Injuries
*
Chronic Pain Has A Major
Impact In The Workplace
*
Exercise Based Treatment
For Dyslexia Branches Out
April, 2006 (Volume 4, Number
4)
[Printable
Version]
Message From The Editor:
Get Help If You Need It
Research Updates:
*
How Many People Have
Chiari/Syringomyelia?
* Abnormal EEG Results Indicate Chiari's
Subtle Effects
*
Decompression Surgery
Helps Chiari Related Scoliosis
*
Computer Analysis Examines Post-Traumatic Syringomyelia
Case Study:
Chiari In Military Personnel
Ray's Corner:
Fake Drugs - A Growing Problem To Watch
For
Family Impact:
Caring For Children With Complex Medical
Conditions, By
Sharon Feder
Special Report:
Idiopathic Intracranial Hypertension aka Pseudotumor Cerebri
In The News:
*
New Strategies Help
Depressed Patients Become Symptom Free
*
Gene Influences
Antidepressant Response
*
Researchers
Restore Vision In Blinded Hamsters
*
Vendors Partner To Offer
Ceiling Mounted MRI
March, 2006 (Volume 4, Number 3)
[Printable
Version]
Message From The Editor:
What Makes A Good Doctor
Research Updates:
*
Do You Know What's In Your Head?
Study Compares Dural Graft Materials
* New Theory Identifies The Post-Syrinx Syndrome
* Two Different Techniques Analyze
Chiari Related CSF Pressure
*
Some People Are Able To Move Past Chronic Pain; How Do They Do It?
Case Study:
Chiari Linked To Fabry Disease
Ray's Corner:
Chiari & Aerobic Exercise
Viewpoints -
The Journey From Grief To Growth:
*
A Mom's Point Of View
*
A Daughter's Point
Of View
Good News Story:
3,000 Miles To
Success For A Young Boy
In The News:
*
Some People In
Pain Unlikely To Seek Treatment
*
New Book Says Look In
The Spice Rack For Pain Relief
*
FDA Approves New Patch For
Depression
*
Nerve Jumper Cables Engineered
For Spinal Cord Repair
February, 2006 (Volume 4, Number 2)
[Printable
Version]
Message From The Editor:
Update From Dr. Lazareff;
Spokesperson; Parent's Column
Research Updates:
*
Why Do Some People With
Syringomyelia Develop Central Pain?
* Decompression Surgery Helps Chiari
Related Sleep Apnea
* CSF Velocity Changes With Age
Case Study:
Chiari
And Growth Hormone Deficiency
Ray's Corner:
What Would It Take To Develop A Chiari
Drug?
In The Spotlight:
Dr. Clare Rusbridge, Veterinarian, Discusses What We Can Learn About Chiari
From The Cavalier King Charles Spaniel
Family Impact:
Marital Stress Can Affect Healing
You Gotta Laugh!!
Memories
In The News:
*
Cause Of Ongoing
Spontaneous Pain Discovered
*
Master Genetic
Switch Found For Chronic Pain
*
Survey Finds Millions At Risk
From Side Effects Of OTC Pain Medicines
*
Individuals
Honored For Their Contributions To Pain Management
January, 2006 (Volume 4, Number 1)
[Printable
Version]
Message From The Editor: Reasonable Accommodations
Research Updates:
* More Evidence That Pseudotumor Cerebri Plays A
Role In Failed Chiari Surgeries
* Is Chiari 0 For Real? Research Shows Small Posterior Fossa In Chiari
0 Patients
*
Thinking Away Pain: MRI Enables People To Control Pain
*
Syringomyelia Without Chiari
Is Difficult To Treat
Case Study:
Spinal Realignment Resolves Chiari
Symptoms
Special Report: The
Year In Research - 2005
From The Desk Of Dr. Bland:
Chiari & Sleep Apnea
Good News Story:
Moving On With Life
You Gotta Laugh!!
Things I Never Thought I Would Do, Say,
Or Hear
In The News:
*
World's First Room Sized MRI
*
New MRI Technology Less
Sensitive To Movement
*
Spinal Cord Patients Receive Own
Stem Cells For Treatment
*
Mirrors Trick The Mind And Help Alleviate Pain
Letters To The Editor:
Weighing In On Cranial Sacral Therapy
November, 2005 (Volume 3, Number 11)
[Printable
Version]
Message From The Editor:
Medical Mistakes A Key Reason To Be An Educated Patient
Foundation News:
What Is Conquering Chiari Worth To You?
Research Updates:
* Total CSF Flow May Predict Surgical Outcome
*
Tracing The Origins Of Chiari
* Dogs Provide Chiari Genetic Clues
*
Patients Define Success
In This Study
Complementary & Alternative
Medicine:
Craniosacral Therapy
Case Studies:
Spontaneous Resolution Of Chiari
The Chiari Experience (New
Feature!):
What Is The Most Inappropriate Thing Someone Has
Said To You?
In The News:
*
New Therapy For Spinal Cord Injuries
*
Simple Test May Help Predict Pain After Surgery
*
Local Anesthetics Effective For Neuropathic Pain
October, 2005 (Volume 3, Number 10)
[Printable
Version]
Message From The Editor:
Pressure Building Against Widespread MRI Use
Research Updates:
*
Study Looks At Abnormal Gag Reflex In
Chiari Children
*
What Is Cerebellar Affective Disorder And What Does It Mean For Chiari
* Chronic Pain Influences Religious &
Spiritual Beliefs
Daily Living:
Link Between
Depression & Physical Symptoms Is Important For Chiari Patients To
Understand
From The Desk Of Dr. Regina
Bland:
Let's Think
About Thinking - The Cognitive Effects Of Chiari
In The Spotlight:
Dr.
Chris Hughes, Professor of Physical Therapy, Discusses Rehabilitation Issues
And Chiari
Case Study:
Severe
Breathing Problems
Perspectives: Stories Of
Chiari Kids & Their Families
*
Hoping A Second Surgery
Will Lead To A Normal Childhood
*
Four Years Of Frustration
*
More Thoughts On Deciding
What Is Right For Your Child
In The News:
*
Cerebellum Shown To Be
Important To Thinking And Behavior
*
Nerve Cell Discovery May
Lead To New Pain Drugs
*
Long Walk Raises Awareness Of
Chronic Pain
September, 2005 (Volume 3, Number 9)
Message From The Editor:
Momentum
Is Building
Research Updates:
* Chiari Link To Small Posterior Fossa Confirmed In Adults
*
Chiari Patients Shown To Have Lower Intracranial Compliance
*
Decompression Surgery Improves Eye Symptoms
*
Accepting Chronic Pain Can Improve Quality Of Life
Case Study:
Chiari &
Trigeminal Neuralgia
From The Desk Of Regina S Bland,
MD, FAAP:
September Is Pain
Awareness Month
Perspectives:
Deciding What Is Right For Your Child
Conquering Chiari:
Laurie Sobas Launches "Coins For Chiari" To Raise Money In Honor Of Her
Son
Foundation News:
Dr. Chris Hughes, Professor Of Physical Therapy, Joins The Scientific
Advisory Team
In The News:
*
Gradient Guides Nerve
Growth Down The Spinal Cord
*
Embryonic Stem Cells
Accumulate Genetic Changes
*
Potential Alternative
To Embryonic Stem Cells Discovered
Letters To The Editor:
Your Feedback
August, 2005 (Volume 3, Numbers 7&8)
Message From The Editor:
Finding A Doctor...You Have To Do The Work
Research Updates:
*
Damage To Cerebellum Affects Cognitive Ability In Children
*
Some Good News For Chiari II Families
*
Review Shows Laser Therapy
Effective For Chronic Neck Pain
*
Family
Physicians Don't Feel Well Trained To Handle Chronic Pain
Case Study:
Dramatic Improvement In Scoliosis After Chiari Surgery
Conquering Chiari:
Ray D'Alonzo, Chiari Patient, Will Culminate His Recovery By Running The Air
Force Marathon And Raising Money For Research
Conquering Chiari:
Ponn Sabra, Women's Empowerment Author, Was Deeply Affected By Chiari, Now
She Is Fighting Back By Donating A Portion of The Proceeds From Her New Book
Foundation News:
Dr. Stephen Hulley, Chair of Epidemiology & Biostatistics At The University
of California, San Francisco Joins The Conquer Chiari Team As A
Scientific Advisor
In The News:
*
Low Level Laser Receives FDA
Approval For Pain Relief
*
Combination Therapy Leads To Partial Recovery In Paralyzed Rats
*
Purdue Scientists Find Key Chemical In Spinal Cord Injury Process
*
Study Finds That Medical Devices Used In Children Are Not Effectively
Monitored
*
Adult Stem Cells Able To Multiply, Seen As Important Breakthrough
You Gotta Laugh!!
Bigger Brain Is Better
Letters To The Editor:
Your Feedback
June, 2005 (Volume 3, Number 6)
Message From The Editor:
It's
Time To Conquer Chiari
Research Updates:
*
Strong Link Between Chiari And Sleep Apnea
*
Case Highlights The Complexity Of Chiari And Syringomyelia
*
Review Of Post-Traumatic SM In England
Case Studies:
Chiari Siblings In The UK; Spontaneous Resolution
Daily Living:
Neuropathic Pain
In The Spotlight:
The Incredible Story Of A Chiari Patient Who Battled An Addiction To Pain
Meds For Years Before Finally Emerging Triumphant
In The Spotlight:
Confluent Surgical Discusses Their Exciting New Product, DuraSeal, Which
Helps Prevent CSF Leaks
Perspectives:
An Athlete Faces Her Toughest Comeback Challenge
Perspectives:
Would You Like A Cup Of Tea With Your Syrinx?
Fixing Broken Nerves:
*
Stem Cell Treatment Improves Mobility After Spinal Cord Injury
*
Preclinical Data Shows Promise For New Drug In Repairing Nerves
*
Uncovering How The Nervous System Is Wired
In The News:
*
Studies Show Doctors Practice Defensive Medicine To Avoid Suits
* Pain
Groups Release Guide To Managing Chronic Pain
*
FDA Changes Labeling Requirements For NSAID's
May, 2005 (Volume 3, Number 5)
Message From The Editor:
A
Second Chiari Revolution?
Research Updates:
*
Surgical Technique Reduces Hospital Time And Costs
*
CSF Flow In Children Before & After Surgery
*
Between Chiari I & Chiari II
*
Beliefs About Pain Strongly Influence Quality Of Life
Perspectives:
No More Hospitals, No More Surgeries
Good News Stories:
*
Disney Wish Comes True For 7-Year Old With Chiari
*
The Greatest Joy
New Technologies & Treatments:
*
Acorda Therapeutics Launches Drug To Treat Spasticity
*
FDA Approves DuraSeal To Prevent CSF Leaks
*
FDA Approves Medtronic Rechargeable Neurostimulation System
Impact Of Chronic Pain:
*
Study Shows That Pain Can Become A Disease Onto Itself
*
Pain & Depression Create A Heavy Burden For Those Near Retirement
Stem Cells:
National Academies Releases Guidelines For Stem Cell Research
Complementary & Alternative Medicine:
*
Some Health Plans Begin To Cover Complementary Care
*
Physical Therapy Can Relieve Pain
Letters To The Editor:
Your Thoughts On The Surgery Webcast; 18 Years And Counting
April, 2005 (Volume 3, Number 4)
Message From The Editor:
Thoughts On Surgery; In Memory of George DiClemente
Research Updates:
* Type Of Headache May Indicate If Surgery
Is Required
*
Chiari & Pregnancy
*
Is There A Difference
Between Real And Imagined Pain?
Family Impact:
*
Spouses Disagree On Level Of Pain & Disability
*
How Nurses Can Help When A Child Is In The Hospital
Good News Story:
Chiari Didn't Stop This Lacrosse
Player...By Marc Meyers
Scientific Breakthroughs:
*
Scientists Uncover
How The Spine Develops Properly
*
New Technique Enables Cells To
Create Their Own MRI Contrast Agent
Repairing Nerve Cells:
*
Motor Neurons Created From
Stem Cells
*
Harvard Researchers
Identify Genes Responsible For Specific Nerve Cells
In The News:
*
Advances In
Treatment Of Intractable Pain
*
Dr. Lazareff, Pediatric
Neurosurgeon, Selected For Endowed Chair
*
Obesity Threatens
To Cut US Life Expectancy
March, 2005 (Volume 3, Number
3)
Message From The Editor:
Paying The Piper
Research Updates:
* New Surgery Proposed For Chiari
*
Surgery Improves Quality Of Life
For About 80% Of Patients
*
Studying CSF Flow To Predict
Surgical Outcome
Case Studies:
The Many Faces Of Chiari
Living With Pain:
*
Chronic Pain Linked To High Blood Pressure
*
Fish Oil & Natural Food
Substance Fight Depression
COX-2 Controversy Continues:
*
Researchers Failed To Gauge Heart Risks Despite Warnings
*
FDA Panel Criticized For Conflict Of Interest
*
FDA Establishes New Drug Safety Panel
New Chronic Pain Treatments:
*
Extended Release Pain Med Enters Phase II Clinical Trials
*
European Commission Approves Marketing Of PRIALT
*
New Pain Patch Launched in UK
Stem Cells:
*
Survey Shows Strong Support For Federal Stem Cell Bill
*
Stem Cell Therapy For Spinal Cord Injury
February, 2005 (Volume 3, Number 2)
Message From The Editor:
Want To
See A Chiari Surgery?
Research Updates:
*
Rats Reveal Clues To The Damage That Syrinxes Cause
*
Looking Back: When Is A
Syrinx Not A Syrinx?
*
Exercise Program Yields Mixed Results For Chronic Neck Pain
News Alert:
Chiari Surgery To Be
Broadcast Live On Web
In The Spotlight:
Dr. Stephen Fletcher, Pediatric Neurosurgeon, Shares His Thoughts On Chiari
And The Upcoming Live Surgery
Perspectives:
Sabrina Says Listen To Your Body
Daily Living:
Nearly Half Of All Personal
Bankruptcies Due To Medical Problems
You Gotta Laugh!!
You Want What For The Pain??
In The News:
*
New Contrast Agent Could Allow MRI To See Individual Cells
*
Survey Shows Lowering Health Care Costs Is Public's Top
Priority
*
NIH Tries To Accelerate General Access To Published Research
* NIH Announces New Ethics Guidelines For Their Researchers
*
Public Worries About Drug Side Effects
*
Older Adults Are Better Able To Cope With Chronic Pain
March, 2004
(Volume 2, Number 3):
Message From the Editor:
Bridging The Patient-Doctor Communication
Gap (Part 3 of 3)
Research Updates:
* The Importance Of Cine MRI
* Helping Children Deal With Post-Operative Pain
* New Theory On How Syrinxes Form
Case Studies:
Chronic Hypertension; Cluster Headache
In The News:
*
New Chronic Pain Drug Enters
Clinical Trials
*
Neurotoxin May Reduce Chronic Pain From Spinal Cord
Injury
*
Reduced Scarring Helps Nerves Grow Through Spinal
Injuries
*
Multi-million Dollar Grant
Funds Experimental Procedure To Stop Paralysis
In The Spotlight:
Dr. Mark Gorchesky, Pain Specialist, Pain Patient,
And Pain Advocate Shares His Unique
Insights On Pain Management
Good News Story:
Debbie Banahasky, Chiari Class Of
'82
Perspectives:
Juggling Five Kids & Chiari
February, 2004
(Volume 2, Number 2):
Message From the Editor:
Bridging The Patient-Doctor Communication
Gap (Part 2 of 3)
Research Updates:
*
Is Surgery Necessary If
There Are No Symptoms?
*
It Can Be Hard To Get A Good
Night's Sleep With Chiari.
* Decompression Surgery Reduces CSF
Velocity.
Case Studies Part I:
Is It Chiari or ALS?, The Link With
Spina Bifida
Case Studies Part II:
Syringomyelia A Century Ago
And The Good News Is:
*
Scientists Grow Neurons Using
Nanostructures
*
Stem Cells
Found In Adults May Repair Nerves
*
Neurologists Create A Font of Human Nerve Cells
Perspectives:
Why
Bedside Manner Matters
You Gotta Laugh!!
Syringo-humor
Letters To The Editor:
Your Feedback
January, 2004
(Volume 2, Number 1):
Message From the Editor:
Bridging The Patient-Doctor Communication Gap (Part 1 of 3)
Research Updates:
*
Studying One Man's Experience With Syringomyelia.
*
How Neck & Arm
Pain Affect Overall Health.
* Looking To The Ear For Guidance.
*
Chiari, Syringomyelia,
Scoliosis, and Surgery.
Case Studies:
Hiccups; Rapid Onset Syringomyelia
Community News:
Two New Dural Patch Products
In the Spotlight:
Cook Biotech Discusses Their New
Dural Substitute Product, Durasis
Perspectives:
My Husband Has
What??
Special Report:
Measuring
Pain, Disease, and Disability
December, 2003
(Volume 1, Number 5):
Message From the Editor:
A Vision For The
Future
Research Updates:
*
Trouble Swallowing May Signal
Chiari In Very Young Children.
*
Predicting Post-Traumatic Syringomyelia.
* Using Ultrasound To
Make Surgery Patient Specific.
* How Much Do Opioids
Help With Chronic Pain?
In the Spotlight:
Dr. Ghassan Bejjani, Neurosurgeon
and Chiari Researcher
Community News:
New Drug Coming For Neuropathic Pain
Daily Living:
Neurontin
Perspectives:
It's Just Tension
You Gotta Laugh!
Kids Say The Darnedest Things
Letters To The Editor:
What The Readers Are Saying
November, 2003
(Volume 1, Number 4):
Message From the Editor:
Walking the tightrope
Research Updates:
*
Looking at
how people combat chronic pain.
* Does the type
of dural graft material matter?
*
Tight
cisterna magna may account for some idiopathic SM cases.
Case Studies:
Sometimes healing gets in the way; Rapid Chiari onset
In the Spotlight (Part 1):
Dr. Paolo, of the University
of South Florida, discusses acupuncture and Traditional Chinese Medicine
In the Spotlight (Part 2):
Thomas Ost,
Licensed Acupuncture Practitioner with the UPMC Center for Complementary
Medicine, discusses acupuncture and Western medicine
Daily Living:
Acupuncture and
Traditional Chinese Medicine
Special Report:
My Acupuncture Experience
Perspectives:
View from
Montana
You Gotta Laugh!:
Peaches, the radioactive
cat
October, 2003
(Volume 1, Number 3):
Message From the Editor:
Managing Your Doctor
Research Updates:
*
Trying to identify why surgeries fail.
*
Treatment options after failed surgery.
*
Can syrinxes resolve on their own?
* What can be learned from 130 Chiari kids?
Case Studies:
Traction for SM, Medicine
for a Cough Headache
In the Spotlight:
Dr. Frank Keefe, Health Psychologist
and Pain Researcher
Perspectives:
A Parent's Hope
Sounding Board:
Are there any positives?
Book Review:
The
Truth About Chronic Pain: Patients and Professionals on How to Face
It, Understand It, Overcome It...by Arthur Rosenfeld
September, 2003
(Volume 1, Number 2):
Message From the Editor:
Let's raise the bar on defining success.
Research Updates:
*
Can testing during surgery
help resolve the surgical debate?
*
Looking for predictors of
surgical success.
*
How to
treat syringomyelia related scoliosis in children.
*
Anesthesia issues during labor for women with Chiari.
Case Studies:
Skydiving, bad elbows, and labor management.
Community News:
New Director at NINDS, ASAP
Annual Conference
In the Spotlight:
Dr. Frank Loth, Bioengineer
Daily Living:
Magnetic Resonance Imaging (MRI)
Sounding Board: Are
there any positives?
You Gotta Laugh!:
There once was a man...
August, 2003
(Volume 1, Number 1):
Message From the Editor:
Welcome to Chiari & Syringomyelia News
Research Updates:
*
New surgical technique attempts to minimize trauma for pediatric
patients.
* What causes the dreaded Chiari cough headache?
* New fluid flow model may shed light on post-traumatic syrinx formation.
* Is the shape of a Chiari malformation important?
In the Spotlight:
Dr. Marcy Speer,
Genetic Researcher, looks for a Chiari gene
Daily Living:
The neurological exam -
What do all those tests mean?
Perspectives:
Dancing with a Syrinx
Sounding Board:
Not Knowing Is The Hardest Part
You Gotta Laugh!:
Do Your
Tonsils Hang Low??
Letters to the Editor:
Your Feedback
Give The Gift Of Knowledge:
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